Response

Response #
181
Person who died
Spouse
Category
Current experience of grief
Respondent details
55-64 | Female | USA
Q1: What was the nature of your relationship with the person who died?
He was 'My Spouse':
Husband, friend, lover, playmate, companion, collaborator, fellow adventurer, partner-in-life, yin to yang, better half, teacher, student, co-worker, driver, navigator... he was my world.
Q2: How has the person’s death affected you during the hours, days, and weeks that followed?
Emotionally detached from everything going on around me. Overly sensitive to social situations for 6 to 7 months during which I did not want to be around others. Initially there were the constant reminders of things done together now being done alone. Grocery shopping was very difficult.
The biggest issue was being alone for hours without contact with others. With no outside distractions I resorted to calling friends and family asking them to simply tell me about their day as a distraction from the nothing going on in my life.
Weekends and nights were the worst as former routines dissolved.
Initially physically/mentally numb to the surrounding world. Things happened around me, but they did not register.
There were many physical issues:
Inability to sleep although exhausted; Sleep remains disrupted, but not as severely as in the first two years. I often wake at 3:30 for up to 2 hours.
Appetite disappeared. Taste was off; food flavors were 'off' or unappealing everything tasted different and unpleasant. Taste returned to more normal after about 9 months. Appetite has not returned to prior enthusiasm for food.
Noise was irritating. I preferred to sit immobile for hours in absolute quiet. Eventually I could tolerate quiet radio then could watch dvds.
For the first two weeks bright light was irritating. Muted light was ok.
I experienced involuntary, uncontrollable, debilitating, panic attacks at just the thought of being away from home overnight would trigger palpitations, trembling, tears and a physical terror. (Day outings, shopping etc posed no issues) These disappeared after 2 years.
Thoughts were fragmented and disjointed. Attention span was non-existent. Normally pragmatic and organized I could not stay focused or on task. Items were frequently misplaced or placed in inappropriate locations (milk in pantry, car keys in fridge)
An avid reader, I lost interest in reading. This interest returned after a few months.
The ability to think clearly and analytically returned about 16 months after my husband's death.
I forced myself to walk daily, but this became a chore and I soon stopped. I resumed walking about a year later when the reminders of joint walks and hikes were less emotionally painful.
There was no interest in going places, doing things or meeting with friends. Emotionally it was too painful. This changed about 16 months after being widowed.
Motivation to tackle projects and chores was non-existent. Handling daily household tasks was about all that was manageable. In retrospect it was done in a bit of a mental fog (see above.)
Self-confidence disappeared with the death of my husband. The slightest challenge would trigger an emotional breakdown. The smallest achievements made a huge impact and slowly rebuilt my self-confidence. Laughing was awkward. It may have happened outwardly, but the joy, the inner pleasure that should accompany laughter is still missing. The true "joie de vivre", that spark that lights one up from within, seems to be extinguished. I hope it rekindles one day...
Initially one looks back at the time spent with the deceased. You cling to the memories and the achievements because that is what you shared together...that is how you keep that person with you.
I treasure my memories but believe I must look forward to succeed in living.
Q3: How, if at all, have your relationships with other people (particular individuals and other people in general) been affected by the bereavement?
Many do not understand how the death of a life partner rips the survivor's world apart. The expectation that you 'get over' your sorrow in a few weeks or months like you would a cold is appalling. Former friends stopped speaking to me because they believed I was wallowing in my sorrow 6 months after being widowed. Their lack of support indicated how shallow the friendship was and they are not missed. Many of my current friends are people who I have met since the death of my husband - they have only known me as a (young-ish) widow.
Q4: Does the surrounding world seem any different to you while grieving? If so, how?
No
Q5: Has your experience of time changed in any way?
No
Q6: Has your body felt any different during grief?
Yes - see #2.
Q7: Has grief interfered in any way with your ability and motivation to perform various tasks, including paid work?
Definitely. see #2
Q8: Is your experience of grief changing over time? If so, how?
The first year was filled with heart-wrenching sorrow and intense pain of having someone I cared for deeply taken out of my life. Tears flowed all the time.
The second seemed to be emotionally more difficult as if with the shock wearing off now reality of life alone was hitting.
In the third year there was a shift emotionally. The intense sorrow fell away. Tears were still triggered by the most unexpected things, but they did not come as often.

As the years have passed I have adapted to living without my man at my side. I miss him daily, but now after 5 years I am more comfortable in my solo life. It remains lonely not having someone around to do nothing with.
Q9: Have you ever found yourself looking for the person who died or expecting that person to appear?
No
Q10: Are there times, places, and occasions that have made you especially aware of the person’s absence?
(I want to scream at you - REALLY? must you even ask?)
Yes. Everyday....because we had a good relationship.
Doing things we used to do together. Missing the helping hands, the wisdom, the sharing, the caring.
Pondering the " bucket list" we had... Going places that hold precious memories...
Being ill without someone to care for you sucks. Being in isolation without someone else sucks
Managing a household, yard and garden, paying bills, preparing food and having to eat it alone
Doing all these, living life alone after becoming accustomed to doing and sharing all these things with another SUCKS.
Q11: People who are grieving often report experiencing the presence of the person who died. Have you had any experiences that you would describe in those terms?
Yes
Q12: Do you still feel a sense of connection with the person? If so, could you say something about when you feel this and what the experience is like?
-
Q13: Since the person died, is there anything that you have been doing in order to feel close to them?
Photos of my husband are a slideshow background on my PC.
I talk to him / his memory at certain times.
I honor the special days we shared and wear our wedding bands on a chain around my neck.
Q14: Is there anything that you do in order to avoid being reminded of the person or of their death?
No
Q15: Has anything in particular helped you to cope with grief? Has anything made you feel better or worse?
Talking with other widows and widowers especially those my age has been a great help.
Speaking with those with children and grandchildren not as much as those who like me have no family.

The insensitivity of society/people in general has been VERY upsetting at times.
Grief is not a cold it does not go away after a few days.
Q16: How understanding have other people been? Have others said or done anything that you've found especially helpful or unhelpful?
People are generally not so understanding - unless they are widowed also.
Losing another family member is painful, but the emotional/life connection is different with a spouse.
There are so many things people have said that are hurtful and unhelpful.

I'd like to request you not ignore the deceased. They are a big part of the survivor's life - acknowledge that. We had plans and aspirations as individuals and as a couple.

I want to hear about your memories, your impressions, your experiences of/with my partner. You are not going to make me feel any worse than I already do. You will make me feel better by talking about him. Let me know you have not forgotten him if you knew him!


Death is part of life, but in our society we do such a lousy job of dealing with it.
Q17: How, if at all, has your experience of bereavement changed you as a person?
I am not as motivated or as joyful as I once was.
Q18: How, if at all, does grief over the death of a person differ from other forms of loss that you have experienced?
Not sure how to approach this so rather than write a lengthy essay.
On a scale of 10 with 1 low impact and 10 high.
Stuff. I have no great attachment to most 'stuff'. Stuff can be replaced. 1
Photos. Capture people, places, things, but the memories of where/why/how the photos were taken lies inside me. To lose the reminder of these events is sad, but until my memory goes they cannot be taken from me. 2
Pets. Usually bring us unconditional love and entertainment. 6
People: if I do not know them (family or otherwise) how saddened am I? Strangers 1
Acquaintances 2
Friends 3
Distant family 1-8 (depending on how well I knew them)
Close family 6-8
I cannot relate to losing a child as I have none, but I assume a 9
Spouse/Partner 10
Q19: Are there any aspects of grief that you find particularly puzzling or difficult to put into words?
Do not know.
Q20: Are there any important aspects of your experience that we have not addressed?
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