Response
Response #
165
Person who died
Mother
Category
Current experience of grief
Respondent details
25-34 | Female | British
Q1: What was the nature of your relationship with the person who died?
She was my mother. We had a close relationship and kept in touch almost every day. She was in good health, with no other illnesses, no history of cancer in the family and received negative results to all the cancer screening tests so nobody would have predicted she would die at 65.
Q2: How has the person’s death affected you during the hours, days, and weeks that followed?
I've lost one of the most important people in my life. I had planned a future where she would be there for me and I'd be able to share my life with her. All the significant moments and the really mundane aspects of family life have changed. I feel like a conversation has been cut short, and I have so much to tell my mum. From good news to having a moan about daily life. She'll never know if I get married or move abroad or change jobs or have kids. It's even stuff like when I bake a cake I would have wanted her to see it or have a piece. I've got a lot of fear related to my dad's health, as he's at quite high risk of Covid complications as well as the other illnesses he already has due to an unhealthy lifestyle. I think some of this fear would have been going on regardless, but it's exacerbated by the loss of my mum. Due to Covid I've had very limited face to face contact with family, friends and work colleagues. I've only seen my dad for two afternoons since the funeral. This has made the grieving process really difficult, as I feel like I've had to put my grief 'on hold' to cope with daily life. The constant talk of sickness, hospitals and deaths was very hard at the peak of the lockdown, as sometimes it felt like there was nothing else to think about.
Visiting our family home is really difficult for me now and due to lockdown I haven't been able to go frequently and try to get used to it. It's where she was ill, and we cared for her at home for as long as we could. I had some very vivid dreams in the first few weeks after mum died. I couldn't clear my mind of the images of her while she was weak and in pain. I also feel a sense of grief seeing really everyday objects in the house - things like a book she was part way through reading, or a pair of her shoes that will never be worn again. Hopefully this will improve when we're able to get together as a family and sort through what we want to keep and what we're ready to let go of. Now it's a few months on I still often feel like I can't fully relax to go to sleep at night, thankfully I'm not preoccupied with the really specific grief but I'm just unable to relax. Similarly my sex life has suffered as I just don't feel like I'm really relaxed enough to clear my mind of other things and be fully present for sex. I've found that I feel a real spectrum of emotion in line with my menstrual cycle now, while in the past I have always been pretty consistent. Now I cry about once or twice a fortnight (sometimes just for a few minutes, other times I can't easily calm down for an hour or more). I have problems with my digestion so I worry about the possibility that I could one day experience the exact same illness which took my mum (bowel cancer) sneaking up on me without warning. I'm trying different options to control my symptoms and help me to feel physically healthy as a baseline but it might be a worry which stays with me for a long time.
Visiting our family home is really difficult for me now and due to lockdown I haven't been able to go frequently and try to get used to it. It's where she was ill, and we cared for her at home for as long as we could. I had some very vivid dreams in the first few weeks after mum died. I couldn't clear my mind of the images of her while she was weak and in pain. I also feel a sense of grief seeing really everyday objects in the house - things like a book she was part way through reading, or a pair of her shoes that will never be worn again. Hopefully this will improve when we're able to get together as a family and sort through what we want to keep and what we're ready to let go of. Now it's a few months on I still often feel like I can't fully relax to go to sleep at night, thankfully I'm not preoccupied with the really specific grief but I'm just unable to relax. Similarly my sex life has suffered as I just don't feel like I'm really relaxed enough to clear my mind of other things and be fully present for sex. I've found that I feel a real spectrum of emotion in line with my menstrual cycle now, while in the past I have always been pretty consistent. Now I cry about once or twice a fortnight (sometimes just for a few minutes, other times I can't easily calm down for an hour or more). I have problems with my digestion so I worry about the possibility that I could one day experience the exact same illness which took my mum (bowel cancer) sneaking up on me without warning. I'm trying different options to control my symptoms and help me to feel physically healthy as a baseline but it might be a worry which stays with me for a long time.
Q3: How, if at all, have your relationships with other people (particular individuals and other people in general) been affected by the bereavement?
It was always my mum who I spent the most time on the phone with and swapped photos with on whatsapp, so adjusting into life with one parent has been hard. Dad is learning to be a bit more emotionally available for all three of us now. It's hard to know where his boundaries are with things like sorting through mum's things, finding a cleaner to pick up the household jobs mum used to do etc. I worry about his physical and mental health a lot. In a world without Covid we would have spent so much more time with dad after the funeral, but we are torn as we all want to protect him from the risk of Covid. My partner has been a huge support throughout mum's illness, diagnosis and bereavement. I worry about being a burden on him though. I've felt quite isolated as most of my friends haven't experienced anything like this themselves, so they don't know how to approach talking about it. I worry about upsetting a friend who has a parent living with cancer so we don't talk about it much. This is probably how most of my friends feel about me, but it's just not easy to talk about, especially as I don't live nearby most of my friends. Some work colleagues have been absolutely brilliant, supportive and understanding throughout. I think this is probably to do with them being a little bit older than me, and having experienced similar things before. Others have really upset me, as they behaved as if I was able to give 100% effort straight away when I returned to work. In reality, I was (and still am) frequently feeling upset, tired, angry. I had missed 6 weeks of work, and was trying to catch up while working remotely for the first time. I didn't even have proper IT equipment so it was really horrible to experience this lack of support from some colleagues. I feel more connected with my sisters than before, but I feel a greater sense of responsibility to look after them now that our mum is gone. Both sisters were struggling with their mental health before we knew mum was ill. I know I can't control this but it's hard to see them both struggle. There have been some tensions, as I'm doing comparably quite well, so I feel guilty that I'm managing at the moment while they're going through a harder time. I've found it hard spending time with people who don't know me very well, as the classic conversation opener 'what did you get up to in lockdown?' question stresses me out. I feel like I have to explain what's happened as part of my 'introduction' so they understand at least a basic overview of what's been going on for me this year, and why I might not be in the best mood that day, or in the future.
People I know but who I haven't kept in close contact with recently have innocently asked how my family is, and I've had to briefly explain to them. Then they feel guilty and I feel like I have to reassure them everything's ok.
People I know but who I haven't kept in close contact with recently have innocently asked how my family is, and I've had to briefly explain to them. Then they feel guilty and I feel like I have to reassure them everything's ok.
Q4: Does the surrounding world seem any different to you while grieving? If so, how?
I find it jarring seeing other people having a good time, laughing and enjoying themselves when I feel so low. Things like the clap for the NHS during lockdown made me incredibly angry, because of the hypocrisy. So many people who were publicly supporting the NHS voted for the tories, who have run it into the ground. Families like ours shouldn't have experienced delays in finding an initial diagnosis from seeing a different GP at each appointment, then being told time is short (and making arrangements for transfer to hospice) in such a crowded space, full of other patients and their visitors. Seeing my mum so ill over Christmas has probably changed my outlook on the whole season of winter. I'm dreading the weather changing and reliving the cold and dark days this year and every year going forward. My perspective on things which are usually important to me, like progressing in my career have really changed. This just doesn't seem possible at the moment. I've seen other people moving on and achieving promotions and feel really jealous and resentful that I'm not ready to push myself and take opportunities at the moment.
Q5: Has your experience of time changed in any way?
The dates have changed but especially as every day has been quite similar during lockdown it's been hard to keep track of time. Marking occasions like family birthdays, and the day which would have been my mum's birthday has been very hard.
Q6: Has your body felt any different during grief?
My existing health problems have flared up at times. I've felt very physically tense, grinding my teeth at night (and also during the day when I'm particularly stressed). On a few occasions sex just hasn't felt right (probably because I'm not able to fully relax) and I've not been able to enjoy it.
Q7: Has grief interfered in any way with your ability and motivation to perform various tasks, including paid work?
Yes, my concentration is not as good as in the past. I feel some working relationships are strained as a result of not always meeting other people's expectations. I've found some motivation to try different things like jogging. Sometimes this feels good but other times I feel a bit daft / like I've failed when I've given something a go when I'm not very good. My self confidence is just less steady, so when small things go wrong it can feel like a significant failure.
Q8: Is your experience of grief changing over time? If so, how?
It's not been long enough to say yet. It's changed between the first couple of weeks and the 6 months mark but I expect the next few years things will start to feel different.
Q9: Have you ever found yourself looking for the person who died or expecting that person to appear?
The first time I videocalled my dad I just expected mum to pop into the frame. Rationally I know she's not coming back but as they would always be together, it just felt wrong that she wasn't there too. I've not felt this again yet and going to the house doesn't make me feel that way, but maybe that's in part because I can ground myself and see mum's ashes are there and it all makes sense that her presence isn't in her body anymore.
Q10: Are there times, places, and occasions that have made you especially aware of the person’s absence?
Not yet. I'm worried about the future significant occasions in my life. I just always pictured my mum being there and now I have to plan for a reality where she can't be there. I'm not planning to have children in the next few years but I'm already very jealous of people who experience becoming a mother with their own mother there to guide them and experience being a grandparent.
Q11: People who are grieving often report experiencing the presence of the person who died. Have you had any experiences that you would describe in those terms?
Sometimes things happen which I just know would have made her laugh, and it makes me laugh and I have a sense of comfort and closeness from this. I don't feel like she's with me in a spiritual way though.
Q12: Do you still feel a sense of connection with the person? If so, could you say something about when you feel this and what the experience is like?
I'll always be connected with my mum. We were so similar in some ways, and there are things she taught me, and we experienced together which I'll never forget. Making recipes we made together, using things we bought on shopping trips, seeing views we used to take in together and other things like that. Looking after our family cat who mum adored feels like a form of connection too.
Q13: Since the person died, is there anything that you have been doing in order to feel close to them?
Nothing in particular.
Q14: Is there anything that you do in order to avoid being reminded of the person or of their death?
Nothing in particular.
Q15: Has anything in particular helped you to cope with grief? Has anything made you feel better or worse?
It's been a source of stress, but having work as something to focus on has been good. Especially at a time when so many people are being laid off.
Q16: How understanding have other people been? Have others said or done anything that you've found especially helpful or unhelpful?
Some people have made comparisons (spoken and unspoken) with their own experiences of loss and grief. It's not always fair to do this but I understand why people do it. Comments about taking a lot of time off work and expectations about being able to give my usual work output haven't helped. It's hard to know whether to challenge these things or just let it go. Because it's such an emotional topic, I've tended to just shrug it off and deal with the upset outside of work time, to avoid any further disagreements or possible disciplinary issues about not performing as expected.
Q17: How, if at all, has your experience of bereavement changed you as a person?
I am frightened to move on to the next steps in my life, doing things I've previously looked forward to. I don't think I was fully aware of the level of support I had before, but it's been reduced significantly now and I have so many doubts where previously there was confidence and resilience. I hope this will return in time.
Q18: How, if at all, does grief over the death of a person differ from other forms of loss that you have experienced?
The finality is very different. Nobody made a choice, we had no other options to take and there was nobody to blame.
Q19: Are there any aspects of grief that you find particularly puzzling or difficult to put into words?
I find the uncertainty very difficult. Not knowing how things will change over time, having hopes but not wanting to set myself up for disappointment is very hard.
Q20: Are there any important aspects of your experience that we have not addressed?
No. The questions are very carefully worded and comprehensive.